PH and Specialist

Thank-you Barbara for the ribbon, it's very nice!

In order to be treated accurately for PH you really do need to see a Pulmonary Hypertension Specialist. Pulmonary Dr's don't always know about PH and they do not know how to best treat you. I have been very lucky with my PH specialist. He is kind, he cares about his patients, he

knows what he is doing, and best of all he knows how to treat PH.

My PH Specialist is Dr. Channick, he is at UCSD and he is one of the BEST. In order for me to go see my PH Dr. my husband drives me 2 hours one-way. I DO NOT mind going that far because I know that I am in good hands. And I feel very comfortable with him. I can always ask him questions and he will answer them. My PH Dr. has never never told me that there is nothing else he can do for me. He is always reasurring me. Sandee his nurse always answers my calls or emails the same day when I have a problem. Or there is something going on! Even if I have to go to ER, I have my husband take me over to UCSD. At UCSD they know what they are dealing with when it comes to PH and they know how to best treat a patient. All the nurses know about PH and they know about the different meds for PH and they have been taught how to use the pumps. So we as PH patients at UCSD are in good hands.

Today I had an appt with my PH Specialist. All looks good. As always he addressed all my concerns. And answered all my questions. He did RX neourtin, for my feet pain he told me that foot pain is one of the side effects of Remodulin. He also asked about my leg cramps and he adjusted the Lasix for that. He had Sandee draw blood from my line and everything was good. He told me to go ahead and continue the increase of Remodulin for another month which is when I am supposed to go back and see him.

I urge everyone that has not already done so, to PLEASE PLEASE go see a true PH Specialist. ASAP.

It is very important that you do so, so that you can start feeling better. I am not sure yet how to post the website here for PHA.. but I will find out and post it next time.

Thanks for reading

(((((HUGS)))))