Vicente Fernandez Concert

On Friday Nov. 07 my sister Martha and I went to a concert.
These 2 pics were taken in the sitting area of the Gibson Ampitheather, right before the concert started.

Way long before I was even ill. I would tell my kids and my husband that before I passed I wanted to go see 3 of my favorite artist perform live. Vicente Fernandez is one of them. Now you really would have to be into latin music, especially rancheras and with mariachi. To understand what I am talking about. He is one of the most famous singers of ranchera music along with his mariachi. Well I fianlly got to go see him sing in person. It was chido=awesome, LOL. Both my sister Martha and I enjoyed it very much.

Satuarday Nov 8th was my husbands B'day, We didn't celebrate because we had a 16th b'day celebration for his neice that we were invited to. It was very nice. I drank a lil Margarita :) with lots of salt and lemon! It was yummy and I almost drank another one, but the first one had already gotten to me. So I had to let it pass :(

My husband and his brother both took turns dancing with his long lost half sister. My husband dances so funny, I was LMAO. It looked like he wanted to box! LOL We all had a good time. And before we left my brother in law request the mañanitas for my husbands b'day. Mañanitas is the mexican version of a Happy Birthday song. All in all it was fun!

PH and having fun... As along as you don't over do it ( ejemmm... sometimes we forget not to, though, LOL)

We can all have fun even if we have PH. We do have to limit ourselfs. But we all need to laugh and be happy and once in a BIG while we can actually forget about this terrible illness and have LOTS OF FUN!

Please do enjoy your Sunday :)

(((((HUGS))))))

PH and Specialist

Thank-you Barbara for the ribbon, it's very nice!

In order to be treated accurately for PH you really do need to see a Pulmonary Hypertension Specialist. Pulmonary Dr's don't always know about PH and they do not know how to best treat you. I have been very lucky with my PH specialist. He is kind, he cares about his patients, he

knows what he is doing, and best of all he knows how to treat PH.

My PH Specialist is Dr. Channick, he is at UCSD and he is one of the BEST. In order for me to go see my PH Dr. my husband drives me 2 hours one-way. I DO NOT mind going that far because I know that I am in good hands. And I feel very comfortable with him. I can always ask him questions and he will answer them. My PH Dr. has never never told me that there is nothing else he can do for me. He is always reasurring me. Sandee his nurse always answers my calls or emails the same day when I have a problem. Or there is something going on! Even if I have to go to ER, I have my husband take me over to UCSD. At UCSD they know what they are dealing with when it comes to PH and they know how to best treat a patient. All the nurses know about PH and they know about the different meds for PH and they have been taught how to use the pumps. So we as PH patients at UCSD are in good hands.

Today I had an appt with my PH Specialist. All looks good. As always he addressed all my concerns. And answered all my questions. He did RX neourtin, for my feet pain he told me that foot pain is one of the side effects of Remodulin. He also asked about my leg cramps and he adjusted the Lasix for that. He had Sandee draw blood from my line and everything was good. He told me to go ahead and continue the increase of Remodulin for another month which is when I am supposed to go back and see him.

I urge everyone that has not already done so, to PLEASE PLEASE go see a true PH Specialist. ASAP.

It is very important that you do so, so that you can start feeling better. I am not sure yet how to post the website here for PHA.. but I will find out and post it next time.

Thanks for reading

(((((HUGS)))))

Update ...On my daughters Birthday

We met at . We didnt really have to wait that long. I forgot to take my darn camera! But my daughter saw one of her co-workers there and she took a pic of us. Hopefully she will send them to my daughter and my daughter send them to me.

Let me see, what did I have? Oh yeah..... I had shrimp, shrimp, shrimp and more.... shrimp, LOL.

It was a very nice dinner we chatted about dif things and we laughed, which was good! It was nice being there with them we really enjoyed ourselfs.

Everyone and their mother was there having a Birthday Celebration! LOL It was funny because the waitress/waiters were going around to almost every table with a piece of cake with a candle and singing Happy Birthday.

When it was my daughters time we all joined in and sang to her! They all had desert I ordered mine to go. Key Lime Pie :) Yummm can't wait to eat it!

We eneded leaving like a round 10:30 pm. My daughter told me again to call her if I needed help with anything here at my house and also for my b'day coming up. I am hopful that this time our relationship will last forever!

Thanks for reading have a great day!

((((HUGS)))))

Happy Birthday Mercedes!

Today is my daughter's Birthday. Yesterday evening I was an emotional wreck. I knew I had to decide whether to go with my stubborn brian or my soft heart. I decided to go with my heart. My husband was sitting with me at the table and I asked him if he would take me to Pomona to the Hospital where my daughter works. He asked me why? I told him tomorrow is her birthday and I want to take her some flowers. Well after him joking around with me (like always) he said yes. He then went into the living room to watch the news and I stayed at the table. I was working on a necklace for my sister.

My phone rings. I didn't recognize the number, but I answered it anyway. It was my daughter she said she called me to give me her new phone number. Oh my!! I tried very hard to hold back the tears, of course I couldn't. She tells me don't cry mom. She asked me if I was going to be here at my house on Saturday because she wanted to come over and visit. I told her I wasn't sure what time because I had a concert on Friday. She said ok let me know, mom. I said it ok. We said out goodbyes and hung up. My husband asked me who it was and I told him. And he asked me do you feel better and happy now? I had a grin and said yes :).
So today we went for a late breakfast and he took me to her work and I took her some flowers, a card and a bracelet that I had made for her awhile back. It was purple her favorite color. I called her when we got there and asked her if she could come down, that I was in the waiting area. She came down, she gave me a BIG HUG and a kiss. I wished her Happy Birthday and we talked for a while. She had to go back to work, but before she left asked me if we wanted to join them for dinner at Red Lobster. I told her that we had a few errands to run and that if we got back in time we would go. We are back! So it looks like we are having dinner at Red Lobster :)
I am so happy that she called me and that we are talking. Thanks friends for all your support and good advice :)


BTW, I voted early this am!

Thanks for reading

(((((HUGS))))))

PH and Driving

I haven't driven much since I have been on my wheelchair. If I do go somewhere I need to have someone put up my wheelie and someone to get it down for me once I'm at my destination. So if I have no one I don't drive anywhere.

Well, today I had an appt. to go get my license renewed. I was just going to go get fingerprinted and have an eye test. YIKES! I was so scared that I wasn't going to pass my eye test. I know I need glasses. But my COBRA Ins is messed up right now so I have no dental and vision.

So there I went to my appt. My husband took me. I almost didn't pass it. My right eye doesn't see very well and the letters where blurry. I DMV guy asked me if I was having trouble with my right eye and I answered a little bit. He asked me to go around the corner to this eye machine and he had me read the letters. At one point I had to squint in order to see the letters but... I passed it!

Now what is the point or big deal of having a driver's license if I do not drive? Well... you see I feel a little bit less disabled if I do have one. And I feel that PH has not completely won! I hope that some day I will be able to drive again like I used to. I hope that some day I will not have to count on anyone for help and I hope that day will come soon. PH will not take certain things away from me.

That's why my license is important to me :)

Have a great day

November is PH Awarness Month

I am going to try to post at least once a week on Pulomnary Hypertension. Today though I thought I would start with posting a Poem that I wrote a few years back. When I was recently DX with Pulmonary Hypertension. I never did write a title for it. Here it is.... Kinda sad, so I apologize in advance.

You came into our lives when we least expected it.

Because of you we are weak, unable to speak.

You are such a threat.

Our hearts throb and we even sigh!

But... it's not because we love you.

We are just trying to catch up to our breath.

We think of you night and day.

We wish you would go away!

We're stuck with you no matter what.

If you only knew the pain you have brought,

You are not innocent or pure.

Right now there is no cure....

But we will not give up hope you see,

One day a cure will come.

Just as easy as you came into our lives,

you will always come.

But you will not stay.

And we all hope and pray for that day!

"Dedicated"

"To all of us who are dealing with this terrible disease"

Catalina Lomeli

July 8, 2006

I really do

Hi there phriends. Some of you know a little, about the situation with my daughter. Not a good relationship if you can call what we have a relationship. So I need some advice from anyone that reads my blog.

Her Birthday is coming up in a few days. I don't know what to do. Do I call her, email her (at work, of course I have no other number for her or email addy) to wish her a Happy Birthday? Do I send her flowers to work? Or just let it be?

I don't want to get emotiontal, which I know I will. So im stuck on what to do. Please be honest and tell me what would you all do if you were in my shoes? Don't be shy about what you have to say. I know that it will be my decision at the end. But... I really do need your input.

Thanks so much for reading

(((((HUGS))))))