I cant say I will post everyday. November is PH Awareness Month. And I will write about how it affected my husband, children, grandchildren, brothers, sisters and ME. We need to spread the word out. Many patients are misdiagnosed each day. It is very frustrating when you are told by Dr's that there is nothing wrong with you! You know something is wrong, but they tell you different. And when you are finally told what you have, it feels like if something was just lifted off of you, like a BIG relief. Even though you are told that you have a LIFE threathing disease, you are glad that you finally know what you have!
It has been very hard on me and my family. So much confusion so many tears, to much acceptance, alot of pain. So many downfalls. But... I am glad that I know what I have. I know what I can expect. I know my limits, even though sometimes I am overhelmed. And sometimes, yes I over do it and pay for it the next day... but stubborness is a part of me that well.. will never go away.... Please speard the word about PH and lets hope a cure is found soon!
On another note I started a new PH med on Saturday. Its called Adcirca. I am having the usaual side effects that go with this med, but I am hopeful that it will work for me and help me feel better. I don't ask for alot better just a bit :) The elephant that decided to come visit me and sit its PHat arse on my chest has finally gone back where it belongs, and my SOB is getting better. I am also much better with my stress and my sadness, its getting better, still there but... thnx to my bff JenC. I have a better attitude and I am doing better, I dont know what I would of done without her. Thank-you so much JenC... you are the best friend anyone could ever ask for :) And thnx for not leaving me in my time of need... luv ya
Cathy