Good days Bad day

I have been having some pretty good days. Except for still being SOB when I try to walk or try to do something. I was feeling pretty good. When I would get SOB while sitting I knew that I was retaining fluid, so I would add my Metolazone and feel better.

Yesterday, our destination was to go to Los Angeles. To buy some beads that I needed for a few more orders that I got for bracelets. It was a nice day. First we stopped to eat breakfast at our favorite hole in the wall Mexican food place. The owners already know us, since we are frequent customers and have been for quite a few years. Sometimes when its early and not to many customers they will take a break and join us. For either breakfast or lunch.

Our next stop was La Puente, we stopped at the swapmeet. We were looking for a fruit cutter with a basket. My orange tree has sooooo many valencia oranges. And my husband and son can't reach them. I am always nagging them to cut me some oranges and they just can't. So my husband finally said lets go look for a fruit cutter. We tried Home Depot, Lowes, Ace Hardware and nothing. So that's when he said they would probably have them at the swapmeet. And he was right because we found one :)

We then went on our way to Los Angeles. He took me to the store were I always buy my crystal beads when I can't fimd them online. I did get all the bead colors that I needed, even though I didn't find other stuff. I will just have to wait and go to another store for that. We came home ate dinner and rested. All in all even though I was tired it was a good day.

Today I went to UCSD to see my PH Specialist. My appt went well. My 02 was 92, my bp 100/70 and he said my heart sounded good. We answered all my questions. I told him I could still not walk much without being SOB. So he told me to increase 1-2 ngs per week until for about a month and a half... as long as I could tolorate the side effects. And he said to start today. Which I did while still in San Diego. I was fine all the way home. I even took a long nap on the way back :). I hadn't increased since Nov. 2008. Well a few hours ago I started feeling droopy eyes and the yuckie. Just like I used to feel before, the first few months after I started Remodulin. And now has come the headache, now these are side effects I can tolorate. I just don't like the droopy eye feeling :(

So I guess until I get used to the increases again. I am going to be feeling like this :(

Thanks for reading

Cathy